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I wrote a new piece about long-COVID, its future, and what long-haulers want.
The biomedical community is paying more attention but research is slow & often disregards the vast expertise that long-haulers have amassed about their own condition. 1/https://www.theatlantic.com/science/archive/1857/11/covid-19-long-haulers-pandemic-future/619941/ …Show this threadThanks. Twitter will use this to make your timeline better. UndoUndo -
There's a lot of concern about waning immunity right now. This thoroughly researched, beautifully written, and surprisingly reassuring piece by my colleague
@KatherineJWu lays out what we know and what we don't.https://www.theatlantic.com/science/archive/2021/09/waning-immunity-not-crisis-right-now/619965/ …Thanks. Twitter will use this to make your timeline better. UndoUndo -
Ed Yong Retweeted
I wrote a new piece about long-COVID, its future, and what long-haulers want.
The biomedical community is paying more attention but research is slow & often disregards the vast expertise that long-haulers have amassed about their own condition. 1/https://www.theatlantic.com/science/archive/1857/11/covid-19-long-haulers-pandemic-future/619941/ …Show this threadThanks. Twitter will use this to make your timeline better. UndoUndo -
Ed Yong Retweeted
Even if my *individual risk* is low, this is why I care about stopping the chain of transmission. Our collective actions hamper or help overburdened health care systems. Peaks won’t last forever, it’s worth protecting the most vulnerable.https://twitter.com/uche_blackstock/status/1433430712363864065 …
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Ed Yong Retweeted
When a tweet turns into an OpEd. Check out my piece in today’s
@washingtonpost on my own pediatric ICU experience with my baby and what’s at stake when pediatric ICUs are at capacity, like they are now across country.https://www.washingtonpost.com/opinions/2021/09/02/picu-hospital-beds-children-covid/ …Show this threadThanks. Twitter will use this to make your timeline better. UndoUndo -
Ed Yong Retweeted
Masks prevent transmission and don’t cause harms. If we want children in school in person, we NEED to protect them with masks, vaccines, ventilation, distancing & quarantine!
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Ed Yong Retweeted
My former student did interviews for a multisite study of fibroids trt. Lots of detailed Qs about symptoms & how they’d affected patients’ quality of life It was not uncommon for patients to break down crying: they said, Nobody’s ever asked me about this. We need to do betterhttps://twitter.com/edyong209/status/1433449636933652480 …
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Ed Yong Retweeted
"discussion of the pandemic still largely revolves around two extremes—good health at one end, and hospitalization or death at the other. This ignores the hinterland of disability that lies in between"
@edyong209https://www.theatlantic.com/science/archive/2021/09/covid-19-long-haulers-pandemic-future/619941/ …Thanks. Twitter will use this to make your timeline better. UndoUndo -
Ed Yong Retweeted
This is it. Part of it is funding but a bigger part is that when research does start, it starts in the wrong places, and the delay that causes is immeasurable.
#LongCovid researchers, please talk to 30 patients before you even *think* about what you want to study.https://twitter.com/jenbrea/status/1433445008737128450 …Thanks. Twitter will use this to make your timeline better. UndoUndo -
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The emails I get after long-hauler pieces are like no others. There are so many people grateful for a sliver of acknowledgment, which is *such a low bar*; what they need and deserve are social support & a research effort that centers their expertise and addresses their needs.https://twitter.com/edyong209/status/1433044687946932224 …
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Ed Yong Retweeted
Black, Indigenous, queer communities have witnessed apocalypse, genocide, the “unthinkable”. Things are not long in the past but in living memory & still happening. Look to the grassroots leaders, the organizers. Let yourself cry, then put your shoes on & get behind them.
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Ed Yong Retweeted
When I feel despair - on climate, voter suppression, immigration, prisons, war, reproductive + community health - I look to those who have been organizing & fighting for years/decades/generations. They are not shocked or in despair. They know we wake up to days like these (1/2)
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Ed Yong Retweeted
Despite more recognition for long COVID, many long-haulers still feel dismissed.
@edyong209 on the enormous cost of neglecting the millions of people caught in disease limbo—and the many more who may end up there:http://on.theatln.tc/zapZ1g6Thanks. Twitter will use this to make your timeline better. UndoUndo -
Stellar line-up for this eventhttps://twitter.com/BhadeliaMD/status/1433245880514195458 …
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Ed Yong Retweeted
"Like Merry and Pippin, long-haulers are growing frustrated that what is self-evident to them—their condition is very real and in need of urgent attention from those with power—is taking a worrying amount of time to be acknowledged and acted upon."https://www.theatlantic.com/science/archive/2021/09/covid-19-long-haulers-pandemic-future/619941/ …
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Ed Yong Retweeted
Who determines the best use of grant funds for long COVID? Letting only academic reviewers decide “erases the voices of those whose condition is the subject of the research.”
@edyong209 with a thoughtful piece on the need for patient-centered research.https://www.theatlantic.com/science/archive/2021/09/covid-19-long-haulers-pandemic-future/619941/ …Show this threadThanks. Twitter will use this to make your timeline better. UndoUndo -
Ed Yong Retweeted
Thank you so much,
@edyong209. More than anything, this is what we need people to know. We need help. Diagnosis and treatment mean nothing when we can't afford to live. We've macheted the path through the jungle together. We will leave no one behind.https://www.theatlantic.com/science/archive/2021/09/covid-19-long-haulers-pandemic-future/619941/ …Thanks. Twitter will use this to make your timeline better. UndoUndo -
Ed Yong Retweeted
Just did this interview with Ed Yong about gaps in
#LongCovid research and the need for patients as research partners!https://twitter.com/CBSNews/status/1433183471724285952 …
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Ed Yong Retweeted
“It just felt like, Have you talked to any of us?” Fabulous story by
@edyong209. What stands out most is how much science needs to engage beyond disciplines & silos, flip traditional models of expertise to include patients & communities we aim to serve.https://www.theatlantic.com/science/archive/2021/09/covid-19-long-haulers-pandemic-future/619941/ …Thanks. Twitter will use this to make your timeline better. UndoUndo
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