Gwen Darien

@Gwen_Darien

EVP for Patient Advocacy,

New York, NY
npaf.org
Tilmeldt januar 2018
15 billeder og videoer Billeder og videoer

Tweets

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  1. retweetede
    13. jan.

    Flawed vaccine rollout will create political stars — and has-beens: the great looks at the political stakes accompanying the life and death ones. via

    4 retweets 2 likes
    Fortryd
  2. 13. jan.

    Essential blog by in the wake of the assault of Jan 6. Powerful call to action to dismantle systemic racism. For the health services research field, and for all of us, to do the hard work of public citizenry and policymaking.

    2 retweets 3 likes
    Fortryd
  3. retweetede
    8. jan.

    On Jan 22, 25, and 27, join and for a virtual workshop on improving the evidence base for treating older adults with cancer. Register:

    1 retweet 1 like
    Fortryd
  4. 6. jan.

    Congratulations! Perfect position for a visionary thinker and pragmatic actor

    DCRI welcomes to its leadership team effective Feb. 1. Perakslis will provide strategic vision and oversight of DCRI’s digital research initiatives & technology affairs to advance DCRI's portfolio. More:
    1 like
    Fortryd
  5. 6. jan.

    Thank you I vividly remember holding your hands as you learned to walk around my father's house. The hat that I wore to cover my bald head kept on slipping off during my first diagnosis 25 years ago. You gave me such a sense of life and future.

    If you or a loved one had or have cancer, this podcast is a must-listen. My aunt has dedicated her life to patient advocacy, and it’s a fascinating look at the transformation in cancer survivorship and advocacy. (My hero!)
    1 svar 1 retweet 6 likes
    Fortryd
  6. 4. jan.

    Thank you Great talking to you and thinking about these past decades of cancer survivorship and advocacy that we have shared.

    [HAPPY NEW YEAR LUMINARY POD] w/ discussing her storied 30+ year history as a advocate, including some groundbreaking and unprecedented stuff at the time. Enjoy. Subscribe to wherever you get your pods
    3 retweets 5 likes
    Fortryd
  7. retweetede
    3. jan.

    “To be known. To be heard. To have one’s unique identity recognized & seen as worthy. It was a universal desire.” Essence of .

    . . 1/1 “Maintaining this social contract...required trust. It required we see ourselves as bound together...as community, each member worthy of concern & able to make claims on the whole.”
    2 svar 5 retweets 11 likes
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  8. retweetede
    3. jan.

    TRUST is essential to healing relationships. We can’t achieve equitable health or health care without building a high-trust health care system.

    3/3 We offer three recommendations for a higher-trust health system: 1) minimize emphasis on patient consumerism 2) promote authentic partnerships 3) accelerate payment and delivery system reforms cc
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    3 retweets 4 likes
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  9. 22. dec. 2020

    The disproportionally high impact of Covid-19 on marginalized racial and ethnic minorities was expected. What are we going to ensure that it doesn't happen again? We offer potential pathways in "Structural Racism and Covid-19 Pandemic."

    We need community engagement to develop culturally-sensitive responses to systemic racism, write in
    3 retweets 4 likes
    Fortryd
  10. 17. dec. 2020

    Discussing the financial impact of a treatment and its resulting “toxicity” helps patients make informed decisions about their care. Part 2 of blog series with Christine Wilson on assessing cost of care.

    2 retweets 1 like
    Fortryd
  11. retweetede
    16. dec. 2020

    Declining trust in health care stems partly from inherent contradictions at the heart of the system. Progress starts with recognizing that trust begins in healing relationships between patients & physicians

    9 retweets 28 likes
    Fortryd
  12. 16. dec. 2020

    All are essential to building healing relationships that lead to better outcomes for patients, communities and society.

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    1 like
    Fortryd
  13. retweetede
    15. dec. 2020

    While our JAMA Viewpoint on trust and transparency in physician-patient relationships highlighted 3 ideas, there are so many more. If we had another 1200 words, I’d want to feature data-sharing practices. I’d start with , a model for transparency in support of trust.

    My Viewpoint w/ offers 3 ideas for transparency as a trust-building practice in physician relationships with patients: disclose external relationships, communicate about performance, reveal humanity
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    1 svar 3 retweets 9 likes
    Fortryd
  14. 15. dec. 2020

    Excellent piece by

    Few things are more important than trust—yet so easy to lose and break. My piece in today’s with Jay Crosson and Catherine Lucey focuses on how healthcare leaders build and destroy trust with their teams—and society writ-large.
    1 retweet 4 likes
    Fortryd
  15. 15. dec. 2020

    Patient Consumerism, Healing Relationships, and Rebuilding Trust in Health Care | Health Care Reform | JAMA | JAMA Network Authentic patient/physician partnerships are critical to rebuilding trust in health care. ⁦⁩ ⁦⁩

    1 retweet 6 likes
    Fortryd
  16. 15. dec. 2020

    Thoughtful, thought provoking and diverse perspectives about the essential role of trust in health care. So proud to be part of this collection of viewpoints.

    Check out some of the other great Trust in Healthcare pieces in the current issue by authors in
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    2 retweets 4 likes
    Fortryd
  17. retweetede
    13. dec. 2020

    Trust is fundamental, reciprocal & ideally, pervasive. If it is present, anything is possible. If it is absent, nothing is possible. What have y learned about trust? info@abimfoundation.org ⁦⁩ ⁦⁩ ⁦⁩

    5 retweets 8 likes
    Fortryd
  18. 9. dec. 2020

    And, speaking as a 3-time cancer survivor, cancer is definitely not a gift. Thank you for your important insight.

    I see a lot of people talking about the survival rate of COVID-19 as if it's a reason to dismiss the virus Speaking as an oncologist, you can survive a cancer diagnosis too, but you still don't want cancer
    1 svar 2 likes
    Fortryd
  19. 9. dec. 2020

    Thank you we always learn so much when we bring patients voices and experiences and caregiver context to addressing the impact of cost of care on patients, communities and our health care system.

    Thoughtful piece from - related to other work & did w/ & w/
    1 retweet 5 likes
    Fortryd
  20. retweetede
    9. dec. 2020

    What are the obstacles and opportunities for incorporating discussions into clinical practice for patients and caregivers? features Avalere and ’s work in this blog post:

    1 retweet 3 likes
    Fortryd

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